Li Fraumeni Syndrome
Li-Fraumeni syndrome (LFS) is a rare hereditary condition that increases your risk of developing multiple cancers, often at an early age. It is caused by a change or mutation in a gene that can be passed down in families.
People with LFS have a 50% chance of passing the syndrome to their children. Cancers most often associated with LFS include adrenal gland, brain, breast, gastrointestinal, leukemia, melanoma, osteosarcoma and soft tissue sarcomas.
Children’s Mercy Kansas City and The University of Kansas Cancer Center have established the Heartland's Li-Fraumeni Syndrome program to provide seamless leading-edge care and surveillance across the age continuum from children to adults. Heartland's LFS care team includes certified genetic counselors, pediatric and adult medical oncologists, geneticists and coordinated nurse navigation.
- Cancer Center
- Cancer in Adolescents and Young Adults
- Brain Tumor Treatment
- Experimental Therapeutics
- Genomic Medicine in Cancer Treatment
- Histiocytosis Program
- Leukemia and Lymphoma Program
- Li Fraumeni Syndrome
- Liver Cancer Treatment
- Proton Therapy
- Soft Tissue and Bone Sarcomas
- Spanish-Speaking Cancer Clinic
- Surveillance for Predisposition to Tumors (SPoT) Clinic
- Survive & Thrive
- Cancer Center Family Care Team
- Hematology, Oncology, and Blood and Marrow Transplant
- Meet the Team