Turner Syndrome
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Turner Syndrome, Great HeighTS Clinic
Children's Mercy's Turner Syndrome Clinic, Great HeighTS Clinic, is one of the largest Turner Syndrome programs in the country, providing comprehensive care for more than 70 children in the region. One-day clinics are held every four months giving Turner Syndrome patients and families an opportunity to meet with multiple pediatric specialists in one convenient location. Each child's visit includes complete lab and X-ray procedures. During the one-day clinic, families and patients are invited to take part in a social activity at the hospital in order to increase communication and education regarding the rare disease.
Services provided:
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Multi-disciplinary management of identified health concerns
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Screening for associated health and developmental concerns
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Nutrition
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Hearing and Speech
The Turner Syndrome Society Kansas City chapter has provided valuable resources and support to patient families of Children's Mercy.
What is Turner Syndrome?
Turner Syndrome is a genetic disorder that causes problems with growth and health. This condition occurs only in females. Turner Syndrome occurs in about 1 in every 2,500 female births.
Symptoms
Women with Turner Syndrome are usually very short. Other symptoms vary from person to person and may include:
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Ovaries do not develop
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Abnormal shape of the palate in the mouth
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Ear infections
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A fold of skin between the shoulder and the neck
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Breasts do not develop
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Some differences in the fingernails and elbows
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Heart, kidney, hormonal and skeletal problems
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