Congenital Heart Defects
Children's Mercy has worked closely with the National Pediatric Cardiology Quality Improvment Collaborative and families to provide support and resources throughout your child's heart journey. We've created various resources related to congenital heart disease (CHD) and hypoplastic left heart syndrome (HLHS).
These resources were designed by parents of children with congenital heart defects, in collaboration with mental health and health care professionals, to provide information and resources that may be helpful for your family as you prepare for your child's heart journey.
Congenital heart defects
A Parent's Guide to CHD: Understanding Prenatal Diagnosis
A Parent's Guide to CHD: Understanding Postnatal Diagnosis
A Parent's Guide to CHD: Adjusting Post-Surgery
A Parent's Guide to CHD: Tube Feeding
Hypoplastic left heart syndrome (HLHS) or other single ventricle diagnoses
A Parent's Guide to HLHS: Understanding Prenatal Diagnosis
A Parent's Guide to HLHS: Understanding Prenatal Diagnosis (Spanish)
A Parent's Guide to HLHS: Understanding Postnatal Diagnosis
A Parent's Guide to HLHS: Understanding Postnatal Diagnosis (Spanish)
A Parent's Guide to HLHS: Coping During Interstage (CHAMP)
A Parent's Guide to HLHS: Coping During Interstage (CHAMP) (Spanish)
A Parent's Guide to HLHS: Adjusting Post-Glenn
A Parent's Guide to HLHS: Adjusting Post-Glenn (Spanish)
A Parent's Guide to HLHS: Raising a Toddler
A Parent's Guide to HLHS: Preparing for Fontan Heart Surgery