Research Studies and Clinical Trials Search
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A tool used to collect information about Juvenile Idiopathic Arthritis
PR-COIN is a registry that focuses on improving the quality of the care patients of all ages with juvenile idiopathic arthritis (JIA) receive. Data is collected from the participant's rheumatology appointments and entered into a registry database. With the data collected...
PR-COIN is a registry that focuses on improving the quality of the care patients of all ages with juvenile idiopathic arthritis (JIA) receive. Data is collected from the participant's rheumatology appointments and entered into a registry database. With the data collected rheumatologists around the country can work on improving the standard of care they give to their patients. This study is designed to improve disease control, improve quality of life for patients, support families in managing their child's condition, and many other quality improvement objectives.
A tool used to collect information about juvenile rheumatic diseases
The CARRA Registry is a database that monitors patients for 10 years and is limited to patients with rheumatic conditions under the age of 18 years old depending on their diagnosis. The information collected from participants is gathered from their rheumatology appointments every...
The CARRA Registry is a database that monitors patients for 10 years and is limited to patients with rheumatic conditions under the age of 18 years old depending on their diagnosis. The information collected from participants is gathered from their rheumatology appointments every 6 months, with some short questionnaires for patients and families to answer about their overall health. With the data collected rheumatologists around the country can evaluate effectiveness of medication and monitor patient health.
Chronic Anterior Uveitis: A study testing levels of Humira in the blood for uveitis treatment
This study is for children: •Under 18 years of age • Must have chronic anterior uveitis • Must be starting Adalimumab (brand name Humira) for active uveitis...
This study is for children: •Under 18 years of age • Must have chronic anterior uveitis • Must be starting Adalimumab (brand name Humira) for active uveitis • No previous Adalimumab treatment can have occurred The purpose of this study is to understand whether blood levels of adalimumab (brand name: Humira) can be used to predict how well the uveitis will respond to adalimumab. Patients who participate will have blood samples and questionnaires collected at 2, 4, and 6 months after starting Adalimumab. Both a rheumatology and ophthalmology exam must be completed during those study visits.
Chronic Uveitis: A Study Looking at Social Factors and Uveitis Outcomes
This study is for children: • Between 0-22 years old • Must have chronic uveitis • Must be seen in the Uveitis Clinic at Children's Mercy...
This study is for children: • Between 0-22 years old • Must have chronic uveitis • Must be seen in the Uveitis Clinic at Children's Mercy The purpose of this study is to understand whether social factors (like zip codes, access to transportation, etc.) impact uveitis. Patients who participate will complete a one-time survey during a clinic appointment.