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Results

A tool used to collect information about Juvenile Idiopathic Arthritis

PR-COIN is a registry that focuses on improving the quality of the care patients of all ages with juvenile idiopathic arthritis (JIA) receive. Data is collected from the participant's rheumatology appointments and entered into a registry database. With the data collected...

A tool used to collect information about juvenile rheumatic diseases

The CARRA Registry is a database that monitors patients for 10 years and is limited to patients with rheumatic conditions under the age of 18 years old depending on their diagnosis. The information collected from participants is gathered from their rheumatology appointments every...

Chronic Anterior Uveitis: A study testing levels of Humira in the blood for uveitis treatment

This study is for children: •Under 18 years of age • Must have chronic anterior uveitis • Must be starting Adalimumab (brand name Humira) for active uveitis...

Juvenile Idiopathic Arthritis (JIA): A study of tears and blood markers for JIA and uveitis

The longitudinal tears portion of this study is for: • Juvenile Idiopathic Arthritis without Uveitis (JIA-no-U): Diagnosed with JIA (RF-negative, oligoarticular, psoriatic, or undifferentiated) within the last four years and are less than 18 years of age at the time of...

Juvenile Spondyloarthritis: A study to Compare the Likelihood of Disease Flare Associated with Continuing, Tapering, or Stopping Medication in Children

• 8-21 years of age • patients must have been diagnosed with Juvenile Spondyloarthritis • patients must be currently taking a TNFi medication (Adalimumab, Certolizumab, Etanercept, Golumumab, Infliximab) • patients must not have active disease for a minimum of 6 months...

Non-infectious Uveitis: A study trying to predict the response of Methotrexate on non-infectious uveitis using eye testing

This study is for those who are: • less than 18 years of age • patients must have been diagnosed with non-infectious uveitis • patients must be starting Methotrexate for treatment of non-infectious uveitis...

Pediatric Joint Hypermobility and Ehlers Danlos Syndrome: Patient quality of life and symptoms survey

This study is for children: • 5-22 years of age • Patient must have Pediatric Joint Hypermobility or Ehlers Danlos Syndrome • Patient must be seen in the EDS clinic at Children's Mercy or the Rheumatology clinic with Dr. Jones...